Communication Strategies in Negotiating Autonomy and Consent for Persons with Dementia (PWD)

Communication Strategies in Negotiating Autonomy and Consent for Persons with Dementia (PWD)

Josephine Misaro, Jimoh J. Braimoh, Josephine Akuamoah Boateng

International Journal of Enhanced Research in Medicines & Dental Care (IJERMDC), August 2024

Open Access

Abstract

Objectives

The aim of this study is to explore the communication strategies deployed by administrators and staff in Assisted Living communities in negotiating sexual autonomy. Furthermore, the study investigates outcomes and effectiveness of such strategies in maintaining independence and freedom for Persons With Dementia (PWD)’s sexual and intimacy desires.

Method

This research relies on thematic qualitative design using interviews for collecting data. Semi-structured interviews with administrators and staff from 7 assisted living communities were analyzed based on how PWDs are communicated with and the outcomes.

Results

The findings revealed that some communication strategies, namely, Watchful Oversight/Oversurveillance, Redirecting, and Reporting ensure safety but often compromise residents’ autonomy and well-being. Formal policies on sexual rights and comprehensive staff training could foster a more supportive and inclusive environment.

Discussion

This research is important because it emphasizes the unique communication strategies that support the autonomy and dignity of PWD. It was evident from the findings that while the communication strategies of Oversight/Oversurveillance, Redirecting, and Reporting ensure safety and compliance, they often compromise residents’ autonomy and well-being. Balancing these strategies with empathy, formal policies on sexual rights, and comprehensive staff training is crucial for a supportive and respectful environment in AL communities.