GA4GH Policy Brief: children’s data protection and genomic research (part 2: consent and lawful bases)

GA4GH Policy Brief: children’s data protection and genomic research (part 2: consent and lawful bases)
Global Alliance for Genomics and Health, 4 February 2025
Abstract
Following discussion of general considerations related to protection of children’s genomic and health data, part two of this two-part Policy Brief further explores considerations with respect to consent and lawful bases under the General Data Protection Regulation (GDPR). This two-part Policy Brief is published as part of the GA4GH Health Data Sharing, Privacy, and Regulatory Forum’s work to explore laws and regulations that have an impact on genomic and related health data sharing. The GA4GH Health Data Sharing, Privacy, and Regulatory Forum publishes Policy Briefs to explore laws and regulations that have an impact on genomic and related health data sharing. Following discussion of general considerations related to protection of children’s genomic and health data, published on 23 January, part two of this two-part Policy Brief, by Michael J. S. Beauvais, further explores considerations with respect to consent and lawful bases under the General Data Protection Regulation (GDPR).