Consent in the face of death
Camilla L. Scanlan, Cameron Stewart, Ian Kerridge
Ethics in Medicine, 24 January 2019; 49(1) pp 108-110
Abstract
While the traditional model of consent is supported by codes and theories of ethics, is enshrined in law, and provides the core of health policy and clinical governance, it is unclear how accurately it reflects clinical practice and in particular how accurately it accounts for edition‐making in ‘high‐risk’ situations where patients are critically ill and facing death.

Should I Agree?: Delegating Consent Decisions Beyond the Individual
Bettina Nissen, Victoria Neumann, Mateusz Andrzej Mikusz, Rory Gianni, Sarah Clinch, Chris Speed, Nigel Andrew Justin Davies
Lancaster University, 7 January 2019
Abstract
Obtaining meaningful user consent is increasingly problematic in a world of numerous, heterogeneous digital services. Current approaches (e.g. agreeing to Terms and Conditions) are rooted in the idea of individual control despite growing evidence that users do not (or cannot) exercise such control in informed ways. We consider an alternative approach whereby users can opt to delegate consent decisions to an ecosystem of third-parties including friends, experts, groups and AI entities. We present the results of a study that used a technology probe at a large festival to explore initial public responses to this reframing focusing on when and to whom users would delegate such decisions. The results reveal substantial public interest in delegating consent and identify differing preferences depending on the privacy context, highlighting the need for alternative decision mechanisms beyond the current focus on individual choice.

Informed Consent: A Monthly Review
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January 2019

This weekly digest is intended to aggregate and distill key content around informed consent from a broad spectrum of practice domains and organization types including key agencies/IGOs, NGOs, governments, academic and research institutions, consortiums and collaborations, foundations, and commercial organizations. We also monitor a spectrum of peer-reviewed journals and general media channels. We recognize that this spectrum/scope yields an indicative and not an exhaustive product.

Informed Consent: A Weekly Review is a service of the GE2P2 Global Foundation, which is solely responsible for its content. Comments and suggestions should be directed to:
David R. Curry

Editor
President. GE2P2 Global Foundation
david.r.curry@ge2p2global.org

PDF Version: GE2P2 Global_Informed Consent – A Weekly Review_5 Jan 2019