Repurposing Ethnography to Assess Consent Capacity [BOOK CHAPTER]

Repurposing Ethnography to Assess Consent Capacity [BOOK CHAPTER]
Megan Wright
Research Involving Participants with Cognitive Disability and Differences: Ethics, Autonomy, Inclusion, and Innovation, 5 September 2019; Chapter 24
Introduction
Saira Mehmood illustrates how participant observation, an ethnographic method, can be applied to asses research consent capacity for persons with chronic mental illness who use mental health services at a non-profit organization. Through observation of and interaction with prospective participants and organization staff members, Mehmood was able to get a sense of a mental health service user’s decisional capacity and vulnerability. While this is a novel and beneficial approach to assessing consent capacity, questions remain about its application, appropriateness, and usefulness in other contexts.

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