A framework for tiered informed consent for health genomic research in Africa
Victoria Nembaware, Katherine Johnston, Alpha A. Diallo, Maritha J. Kotze, Alice Matimba, Keymanthri Moodley, Godfrey B. Tangwa, Rispah Torrorey-Sawe, Nicki Tiffin
Nature Genetics, 28 October 2019; 51 pp 1566–1571
Abstract
A generic framework for providing participant information and implementing a tiered consent process for health genomic research in Africa can help to harness global health benefits from sharing and meta-analysis of African genomic data while simultaneously respecting and upholding the autonomy and individual choices of African research participants.
Center for Informed Consent Integrity 