Perspectives on Informed Consent Practices for Minimal-Risk Research Involving Foster Youth

Perspectives on Informed Consent Practices for Minimal-Risk Research Involving Foster Youth
Pediatrics Perspective
Mary V. Greiner, Sarah J. Beal and Armand H. Matheny Antommaria
American Academy of Pediatrics, March 2020
Excerpt
There are >430 000 children in protective custody (ie, foster care) in the United States. Despite known health disparities, there continues to be limited research to develop an evidence base for diagnosing and intervening to improve health conditions for children in foster care.6 One identified obstacle to recruitment is obtaining informed consent, the legal requirement for understanding and voluntary agreement to participate in research. Foster youth do not have a traditional parent or guardian and instead have many adults playing different roles in their lives, including their children’s services caseworker, their foster caregiver, their biological parent, their court-appointed special advocate or guardian ad litem (GAL), and their judge or magistrate. Each plays a role in decision-making for the child and could participate in the informed consent process…

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