Meaningful Digital Consent in Canada: Recommendations from Pan-Canadian Consent Management Workshops

Meaningful Digital Consent in Canada: Recommendations from Pan-Canadian Consent Management Workshops
Nelson Shen, Iman Kassam, Daria Ilkina, Sarah Wickham, Abigail Carter-Langford
Healthcare Quarterly, January 2022; 24(4) pp 40-47
Abstract
The digital health landscape is rapidly evolving with regard to how society accesses and interacts with digital information and technologies. With a largely commercial marketplace, there are growing concerns that users are not fully informed about how their data are used. Canadian privacy legislation is currently undergoing modernization to improve the transparency of commercial information handling practices through the introduction of meaningful consent. This paper reports on workshops held across Canada, exploring the implications of meaningful consent in a digital health context. Recommendations focus on measures to promote transparency, improve digital literacy and foster public trust in digital health innovations.