Overvaluing individual consent ignores risks to tribal participants
Comment
Krystal S. Tsosie, Joseph M. Yracheta, Donna Dickenson
Nature Reviews Genetics, 15 July 2019; 20 pp 497–498
Excerpt
Genomic studies often rely on individual-based consent approaches for tribal members residing outside of their communities. This consent model fails to acknowledge the risks to small groups such as tribes, which can implicate the community as a whole…
Overvaluing individual consent ignores risks to tribal participants
Center for Informed Consent Integrity 