Moral structuring of children during the process of obtaining informed consent in clinical and research settings

Moral structuring of children during the process of obtaining informed consent in clinical and research settings
Research Article
Anderson Díaz-Pérez, Elkin Navarro Quiroz, Dilia Esther Aparicio Marenco
BMC Medical Ethics, 25 November 2020; 21(122)
Open Access
Abstract
Background
Informed consent is an important factor in a child’s moral structure from which different types of doctor–patient relationships arise. Children’s autonomy is currently under discussion in terms of their decent treatment, beyond what doctors and researchers perceive. To describe the influential practices that exist among clinicians and researchers toward children with chronic diseases during the process of obtaining informed consent.
Methods
This was a cross-sectional, qualitative study via a subjective and interpretivist approach. The study was performed by conducting semi-structured interviews of 21 clinicians and researchers. Data analysis was performed using the SPSS version 21® and Atlas Ti version 7.0® programs.
Results
The deliberative and paternalistic models were influential practices in the physician–patient relationship. In the deliberative model, the child is expected to have a moral awareness of their care. The paternalistic model determined that submission was a way of structuring the child because he or she is considered to be a subject of extreme care.
Conclusions
The differentiated objectification [educational] process recognizes the internal and external elements of the child. Informed consent proved to be an appropriate means for strengthening moral and structuring the child.

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